SHALL Together with hemophilia or bleeding disorders and their supporters on Saturday to celebrate World Hemophilia Day in Luneta, and walk well call on the government to pay attention to the sick of it.
World Hemophilia Day progress to broaden public awareness about this disease.
The hemophilia or bleeding disorder is a disease in which the blood of the patient is difficult to 'clot' normal. The symptoms are easy to bruise, never stops bleeding of wounds, bleeding nose for no reason or blood in the urine or stool. Often the disease is hereditary.
According to the World Federation of Hemophilia, one in every 1,000 Filipino or approximately 100,000 Filipinos there bleeding disorder. However, data from the Philippine Hemophilia Foundation in 1,200 patients with hemophilia only registered with them.
Not only men
"Many medical practitioners and patients themselves are still unaware of the symptoms of hemophilia and bleeding disorders. I was diagnosed at age 36 and throughout my growing up years, I did not have a good quality of life because I was untreated "
yan says Andrea Trinidad-Echavez, that there is "von Willebrand Disease (VWD)" a kind of bleeding disorder with her daughter Star.
Some members of his family also have this kind of disease.
It is believed that most often affected by the disease are men and almost no women struck it.
While growing Echavez is somewhat severe bleeding when she was having her monthly period, resulting in him being anemic. Her mother also died due to excessive bleeding when it is surgery.
Noting that this same son suffered by the Star, they went to Hong Kong for those who have a diagnosis of bleeding disorders.
"Even until today, many doctors still believe that women can not be affected by hemophilia and bleeding disorders. Thankfully, more and more women have come out and are getting themselves diagnosed "
Echavez's promise, an ambassador for MyGirlsBlood and The Women's Bleeding Disorders Coalition both international groups assisting women with bleeding disorders.